Ever have the problem deciding what to eat? We usually resort to "You pick two, I'll decide." I use that often with Joel. I thought that I noticed he would always pick the item I mentioned last; red or blue, cheeseburger or chicken, ice cream or cookies. The answers would be blue, chicken, cookies. So I started saying the one I really wanted last. Today it was "Joel would you like to eat Krystals or Wendy's." Knowing I was looking forward to Wendy's only because they have $0.99 kids meals right now. If you have bought a kids meal recently you know how expensive they are. Who am I kidding though eating out at all is way too expensive. Anyway, Joel's answer: "Burger King." Seriously. So off we went.
It is good to have someone to make the decisions. Atleast for now anyway. If there comes a point when it is always the same thing or there are fits associated with not getting what he wants, then we will have an issue. But for now, Burger King it is.
Update on Joel's back:
Physical therapist seems to think that one of his legs is a tiny bit shorter than the other causing him to keep weight on one side making his back appear curved on x-ray. She said he felt really flexible in his back which was a good thing and put a thin piece of foam in his shoe to see if that would make any difference.
Wednesday, May 20, 2009
Thursday, May 14, 2009
Joel's Ortho Apt 5/13/09
We had a rough start to the morning, including me finding Joel had decided to completely undress while I was in the shower. But he was so proud to announce that he was aware of his bodily functions. While I too share the joy that he is able to know when he is going, the fact that he was giving a shower to the living room carpet didn't please me near as much....
Fast forward through the cleaning and redressing. We made it to the doctor. He had to have 2 x-rays, one of his hips and one of his back. This time they actually gave me the x-rays to carry back to the office. What would anyone do with x-rays? Look at them! I looked and even though most of the x-rays I've seen has been limited to Grey's Anatomy (I'm ashamed to admit, I watch) and my time as a emt and er volunteer, I could tell we were going to have issues to discuss today with the doctor. The spine was curved.
The doctor suspected it at our last visits but wanted to have an x-ray taken with Joel standing instead of laying to see better, and with the x-ray in front of my face there was no denying it. Our new diagnosis to add to Spina Bifida, Arnold Chari Malformation, and Hydrocelephus is Scoliosis. There are a few other things that have been mentioned, but I refuse to add them until there is no doubt. Now we are left with no real answers as to how bad it will be or what course of action will be best. Dr. Moses ("My name is Moses, but I'm no profit") said nothing has been proven to help. Some people exercise and get better, some people brace and get better, but some people get better by doing nothing. "So," he said, "There is no way to know if it was the brace, exercise, or just the touch of God." I'm so glad to have a doctor for Joel that understands God is in control. Infact with some troubles alone the way and a couple of doctor changes, I'm happy with all of Joel's doctors.
So what do we do now? We pray. I cry myself to sleep because I wonder if I'm even worthy of having another prayer answered because He has answered so many on my behalf already. I wish I could say this is the last thing I'm going to need, so just answer this and I'll be good, but it isn't true. Life is a daily struggle and I never know what problem will present itself. Yes, Joel is doing wonderful if you look from the outside. But if you are in my life and seeing it from the inside, there is always something to deal with. I belittle the real seriousness of the issues, I guess, because I always am grateful that it isn't worse. So today when I cry with a broken heart because I don't even have words to pray and because I have been praying a prayer for God to bless me with something I want instead of thanking God for what He has blessed me with and praying for His loving touch on Joel, I remind myself God does care. He cares more than I know. He understands. He answers prayers.
Fast forward through the cleaning and redressing. We made it to the doctor. He had to have 2 x-rays, one of his hips and one of his back. This time they actually gave me the x-rays to carry back to the office. What would anyone do with x-rays? Look at them! I looked and even though most of the x-rays I've seen has been limited to Grey's Anatomy (I'm ashamed to admit, I watch) and my time as a emt and er volunteer, I could tell we were going to have issues to discuss today with the doctor. The spine was curved.
The doctor suspected it at our last visits but wanted to have an x-ray taken with Joel standing instead of laying to see better, and with the x-ray in front of my face there was no denying it. Our new diagnosis to add to Spina Bifida, Arnold Chari Malformation, and Hydrocelephus is Scoliosis. There are a few other things that have been mentioned, but I refuse to add them until there is no doubt. Now we are left with no real answers as to how bad it will be or what course of action will be best. Dr. Moses ("My name is Moses, but I'm no profit") said nothing has been proven to help. Some people exercise and get better, some people brace and get better, but some people get better by doing nothing. "So," he said, "There is no way to know if it was the brace, exercise, or just the touch of God." I'm so glad to have a doctor for Joel that understands God is in control. Infact with some troubles alone the way and a couple of doctor changes, I'm happy with all of Joel's doctors.
So what do we do now? We pray. I cry myself to sleep because I wonder if I'm even worthy of having another prayer answered because He has answered so many on my behalf already. I wish I could say this is the last thing I'm going to need, so just answer this and I'll be good, but it isn't true. Life is a daily struggle and I never know what problem will present itself. Yes, Joel is doing wonderful if you look from the outside. But if you are in my life and seeing it from the inside, there is always something to deal with. I belittle the real seriousness of the issues, I guess, because I always am grateful that it isn't worse. So today when I cry with a broken heart because I don't even have words to pray and because I have been praying a prayer for God to bless me with something I want instead of thanking God for what He has blessed me with and praying for His loving touch on Joel, I remind myself God does care. He cares more than I know. He understands. He answers prayers.
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